November 22, 2014

Adaptive Tricycle!

Take a look at Chase on the adaptive tricycle while at therapy - we're hoping we might be able to borrow it so Chase will get strong enough to do the real trike on his own soon!

November 5, 2014

New Book: What's Inside You Is Inside Me Too!

I took Chase to the Emory Down Syndrome Clinic today for his last appointment with Dr. Jeannie Visootsak before she moves to NY to take on her new position studying Down syndrome targeted medicine with Roche. 

It was so sad to leave her, but I was thrilled to see a preliminary copy of her and Deslie Quinby's new book about Down syndrome, "What's Inside You is Inside Me Too: My Chromosomes Make Me Unique" in which there are several photos of Chase! I can't wait to receive my own copy and was excited to see it already on Amazon for sale!

As Trent would say, Chase is again a "fashion model"... this time in a book!

November 3, 2014

Right to Die vs. Beauty of Suffering

I’m all twisted up inside today upon hearing about Brittany Maynard’s decision to kill herself yesterday in the wake of her progressing terminal brain cancer diagnosis. (See backstory HERE) I have too many questions about her decision that she never answered; questions that I don’t think she ever asked herself. I grieve for her – for her life ending prematurely, for the fact that she felt the need to kill herself, for the fact that she died without knowing Jesus. I grieve for all the people who heard her story and believed the lie that it is braver to commit suicide in the wake of suffering than to live out one’s life surrounded by loved ones, surrounded by God’s comforting hand in the midst of pain, determined to make the most of every moment rather than simply give up and attempt to control something that none of us can control – our natural, God-given and beautiful passing from this world unto the next.

I wonder about the implications of "right to die" acts regarding the disabled, babies with birth defects, abortion, the elderly, guardianship situations.... I fear where our society is going when people decide that comfort at all costs is most important; when people decide that suffering has no place in life; when people start to think that we are each individually in control of our God-given lives.

To read some beautiful words about the value of living life despite terminal illnesses, the value of suffering, and the importance of God in light of death, try this article by John Piper and Desiring God.

Brittany Maynard, Death with Dignity, terminally ill, brain cancerAnd because I am not in Brittany Maynard’s shoes, try listening to this two part interview (Here and Here) with Kara Tippetts who is living in the end stages of terminal breast, brain and blood cancers. Kara had written a public letter to Brittany Maynard (HERE) which sums up all of my feelings beautifully.

And one more thought from C.S. Lewis... "Try to exclude the possibility of suffering which the order of nature and the existence of free-wills involve, and you find that you have excluded life itself." (Problem of Pain)

October 31, 2014

Halloween Update!

I've realized that not only do I need to post pictures from Halloween itself, but I haven't posted photos from our annual trip to the pumpkin patch!! So I apologize for the lapse here, but Enjoy!! We've got Super Mario, Batman, and Princess Sophia the First!